"The Beautiful Brown Rainbow" Do-It-Yourself (DIY) Arts and Crafts company is excited about having a positive impact in the community. Crafting is not only fun, it's therapeutic. Our mission is to educate others and share ideas about various DIY projects. We take pride in handcrafting products and our brand.
"The Beautiful Brown Rainbow" is the title of the first poem I wrote in 2010. A lot was going on in Washington DC's inner-city, like it does now, and I started expressing myself through poetry.
Our logo is a giraffe and it is used to represent tethered cord syndrome (TCS) and means "Keep your head to the sky and your feet on the ground"! Our daughter was diagnosed with TCS in early 2020 and had spinal surgery in December of 2020 at 15 months to untether her spinal cord. Her scar, on her lower back, is a constant reminder of her rare neurological disorder and we hope to bring awareness to TCS.
The Beautiful Brown Rainbow
There are so many shades in it, Somewhere for us all to fit in,
I love being a part of something so majestic, That others sometimes think is pessimistic,
Tan, yellow, chocolate, mocha, dark chocolate, caramel and mavbe even vanilla
So many beautiful shades, how can one ignore
Its way to beautiful to not adore
The beautiful brown rainbow that I love to see
For others it may be a mystery, It is definitely beauty to me, We are all apart of one rainbow The one filled with love and hope
That helps us all to cope
When times get hard, just look in the mirror and smile Look at your beautiful brown rainbow skin for a while
Know you were created by the Creator
So, don't sweat any of the haters
Hold your head up high
There is no time to sigh
Be proud of who you are and don't let anyone discourage you by far
You are a part of the Beautiful Brown Rainbow
What is tethered cord syndrome?
Our goal is to bring awareness to the rare spinal disorder that can cause serious neurological issues. We are in no way providing medical advice and are only interested in bringing awareness to this disorder as parents. Spinal cords move freely in the spinal canal as we grow from children to adults. Tethered Cord Syndrome (TCS) occurs when the tissue is attached to the spinal cord and limits the movement of it. We noticed the "crooked butt" when she was born; however, didn't notice the sacral dimple (it was hidden from plain sight) until after her bath one day at six-months. I mentioned the finding to her pediatrician, at that time, who recommended an ultrasound. Our current pediatrician (as well as her surgeon) adamantly mentions, at every appointment, that she could have been diagnosed sooner. As parents, we don't have a trained eye or expertise to know what to look for. A medical professional should have noticed when she was examined since her signs were visible.
Once abnormalities occur, it's irreversible. Early detection is important, I joined a Facebook group after our daughter was diagnosed and it is truly hard to not get emotional seeing the many children, around the world, affected by something that causes serious neurological issues if unknown and untreated (surgery).
Some Visible Signs In Babies: Sacral dimple, asymmetrical gluteal cleft (crooked butt crack), skin discoloration, or hairy patch on the lower back.
Some Symptoms In Older Children to Adults: Multiple leg issues such as pain, numbness, tingling, deformities; bowel and bladder problems; motor skills issues, back pain, changes in the way the feet look (curled toes), walking on the tip of your toes, or abnormal curve of the spine.
If you have any questions, feel free to send an email. We are still learning about TCS ourselves and our daughter has to see her neurosurgeon every year until she is a teenager.